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De-identification is the process of removing or masking personal identifiers from data to prevent re-identification. Learn about the common strategies, applications, and limits of de-identification, as well as the HIPAA de-identification standards in the US.
22 de nov. de 2021 · De-identified data is data that is not reasonably associated with an individual and has technical safeguards to prevent reidentification. Learn how different states, such as California, Virginia and Colorado, define and regulate de-identified data in their privacy statutes.
- Key Points
- Overview
- Why De-Identify?
- When Is Information ‘De-Identified’ For The Purposes of The Privacy Act?
- What Does A De-Identification Process involve?
- Balancing Data Utility with The Level of Data Modification Required
- Choice of De-Identification Techniques
- Confirming That De-Identification Techniques Are Appropriate
- Considerations After Data Sharing Or Release Has occurred
- Remember: A ‘De-Identified’ Status May Be Context-Dependent
De-identification is a privacy-enhancing tool. When done well, it can help your entity meet its obligations under the Privacy Act and build trust in your data governance practices.Information that has undergone an appropriate and robust de-identification process is not personal information, and is therefore not subject to the Privacy Act 1988 (Cth). Whether information is pe...De-identification involves two steps. The first is the removal of direct identifiers. The second is taking one or both of the following additional steps:This guide provides high-level guidance only. The OAIC recommends that entities also refer to the De-Identification Decision-Making Framework, produced jointly by the OAIC and CSIRO-Data61, which p...Many entities collect and retain information or data that includes personal information. In doing so they must comply with the Australian Privacy Principles (APPs) in the Privacy Act 1988(Cth). The APPs regulate how entities collect, use, disclose and store personal information. In particular, APP 6 places limits on the use and disclosure (sharing ...
This section briefly outlines the situations in which an entity may want or need to de-identify personal information, including under APP 11. There are a range of scenarios in which this might be necessary or desirable: 1. when required by the APPs 2. when an entity wants to share data or information, but this would not be permitted under the APPs ...
Personal information is information which is ‘about an identifiable individual, or an individual who is reasonably identifiable’.‘De-identified’ information is therefore information which has undergone a process of de-identification, and no longer falls within this definition. When considering the meaning of de-identification, it may be useful to r...
De-identification is a process which involves the removal or alteration of personal identifiers, followed by the application of any additional techniques or controls required to remove, obscure, aggregate, alter and/or protect data in some way so that it is no longer about an identifiable (or reasonably identifiable) individual. In line with this, ...
In determining the de-identification techniques that should be used to allow access to data, entities should consider all relevant contextual factors, including: 1. the kind of information or data that is to be de-identified 2. who will have access to the information, and what purpose this is expected to achieve 3. whether the information contains ...
There is no one ‘right’ way to de-identify data. De-identification techniques should be carefully chosen, based on a risk assessment, to ensure that personal information is protected and that the information will still be useful for its intended purpose after the de-identification process. As outlined above, removing or modifying personal identifie...
Before sharing or releasing de-identified information, you should confirm whether the de-identification techniques chosen are appropriate to manage the risk of re-identification. Entities may need to engage an expert to undertake a statistical or scientific assessment of the information to ensure the risk of re-identification is very low in the dat...
De-identified information may still carry some risk of re-identification, particularly where it could be matched with other information which becomes available in future.The risk of re-identification may therefore shift as technologies develop and a greater amount of information is published or obtained by an entity. As a result, entities should re...
It is important to remember that de-identification is not a fixed or end-state. The same information may be personal information in one situation, but de-identified information in another. To use a very simple example to illustrate this point, a person’s licence number (in and of itself, and in the absence of any other information) may not be perso...
De-identification is the process of removing identifying information from a dataset to protect privacy. This report summarizes de-identification research, practices, and challenges, and covers various types of data and methods.
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31 de mai. de 2019 · “Anonymization and de-identification are often used interchangeably, but de-identification only means that explicit identifiers are hidden or removed, while anonymization implies that the data cannot be linked to identify the patient (i.e. de-identified is often far from anonymous).”
- Raphaël Chevrier, Raphaël Chevrier, Vasiliki Foufi, Vasiliki Foufi, Christophe Gaudet-Blavignac, Chr...
- 10.2196/13484
- 2019
- J Med Internet Res. 2019 May; 21(5): e13484.
19 de jun. de 2020 · This whitepaper covers classic de-identification techniques like record suppression, cell suppression, sub-sampling and aggregation as well as the pros and cons of Safe Harbour and Expert De-identification strategies. Make sure to read De-identification 101, 301 and 401 to get the full picture.
Data de-identification is the process of removing personal information from health data to protect privacy and confidentiality. Learn how data is de-identified, pseudonymised and secured in Scotland's Trusted Research Environments.
